The rate of decline varies depending on the genetic makeup of the disorder and also varies somewhat in individuals. The Retinitis Pigmentosa Home Page Index of RP Internet Sites Canadian RP Page University of Iowa RP Page Family Village RP Page Medi Help Retinitis Pigmentosa Page Wilmer Institute RP Page Dixon Vision - Resources for Visually Impaired in Texas Hong Kong RP Society Page Swiss RP Association Home Page Med Help RP Page Canadian National Institute for the Blind German RP Home Page Wellness Web RP Page Retinoschisis Information EyeNet - American Academy of Opthamologists Lighthouse Awards - awards for people helping the visually impaired Blind related EMail LIsts The RP Mailing List Retinal Implant Page - MIT and Mass Eye & Ear Marmer Medical Eye Center -research with RP Artificial Retina Research Focus - Alternative Retina Research Retinal Implant Homepage - A joint German Research Project Retina Implant News in Bonn - University of Bonn Research Society For NeuroScience - Overview of Retina Research Opera Software - Disability Friendly Web Browser ETEX Software - Web Speak screen reader for the WWW Productivity Works - Software for the Blind All articles are in plain text form, suitable for text readers Click on item to view and use your browser to save to your drive Washington Post Arcticle on Fetal Retina Cell Transplants AP article on Chicago Fetal Cell Transplants CNN article on Chicago Fetal Cell Transplants

Royal Blind Society is the major service provider in NSW and the ACT for blind and vision impaired children and adults. Technology Services: a.Adaptive Technology Services b.Transcription Services Rehabilitation Services: c. Low Vision Clinic d. Child and Adolescent Services e. Rehabilitation Counselling f. Vocational Services g. Equipment Resource Centre h. Activities of Daily Living i. Recreation j. Professional Education k. Community Education Library Services: l. Reader Services m. Audio Production Unit n. Reference Library (return to main menu) We can provide up to date information on vision impairment, child development and available services in your area; ongoing support and/or counselling; vision and developmental assessments; individual therapy and teaching programs; information on activities and experiences to encourage the use of remaining vision, other senses and promote development; advice on equipment, books and toys that would be suitable to meet individual needs at various ages; assistance in the placement and integration of your child in local pre-schools and schools; advice can also be given to the school on activity programming; assistance in monitoring the progress of your child throughout the school years as well as support to the student and school staff; camps for adolescents to encourage peer support, help adjusting to vision impairment and promoting independence. a. Types and Causes of Blindness and Vision Impairment b. Prevalence of blindness and Vision Impairment c. How to Guide a Vision Impaired Person d. Protecting Your Vision e. Simulations of Vision Impairment (Nov '95) f. About deaf/blindnesss (return to main menu) While some blind people have very little or no vision, most vision impaired people have some useful vision. The reason not all blind and vision impaired people have the same level of vision is because blindness and vision impairment can be caused by a number of different diseases and conditions, as well as accidents.

If you have 20/800 vision somebody else is probably reading this story to you because you can't see the type on this page - unless you are wearing a device like the Low Vision Enhancement System. This new space-age electronic device helps people with chronic vision impairments, such as macular degeneration, diabetic retinopathy, glaucoma, cataracts, optic nerve disease and retinitis pigmentosa. It is available through the SUNY College of Optometry's University Optometric Center, one of the Pioneering eye care facilities to test and dispense LVES. Roy Cole, Chief of the College's Low Vision Service, heads up a team that screens low vision patients for suitability for LVES, a miniature television system worn on the head. Instead of looking through lenses, the user looks into a sophisticated system of mirrors and lenses to see images on miniature cathode ray tube displays that are housed in "temple arms" of the device which reach back over the ears. If you have 20/800 vision somebody else is probably reading this story to you because you can't see the type on this page - unless you are wearing a device like the Low Vision Enhancement System (LVES).

Retinitis Pigmentosa International supports research to end blindness from degenerative eye disease, promote a public awareness and education campaign, and provide human services programs to better the quality of life for those with vision loss. Retinitis Pigmentosa International publishes a quarterly newsletter The Night Lighter, and offers many pamplets on current treatments, and research in progress. They have available "How to Survive Losing Vision" in print and audio versions. Retinitis Pigmentosa International has local support groups and will provide materials and assistance to individuals wishing to start a group in their area. They also provide services for the visually impaired of all kinds, and in all states. Search OMIM for information on Retinitis Pigmentosa Articles About RP What is Retinitis Pigmentosa?

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> Some months ago I was challenged by a family with a distinct autosomal > variable(visual failure was not a feature in some patients of this family), > Almost all of the affected adult patients in this family have already > I searched the literature and found a report from Enevoldson et al (Brain > We plan to report this family as soon as possible.I would value comments > If someone is interested please contact me.

An upcoming 48-page documentary report in FOCUS, a newsletter that provides an alternative source of information for Retinitis Pigmentosa patients, calls for new directions in scientific research and applied medicine for this progressive eye disorder. The report will be published in a special Spring BONUS edition - The Search for a New Paradigm, by Dr. THIS REPORT WILL BE PROVIDED TO ALL FOCUS NEWSLETTER SUBSCRIBERS - SUBSCRIBE TODAY! fill out the subscription form below   3. (Canadians add $3.00) which includes a one year (3 issues- February, June and October) subscription to FOCUS. Send me a one year subscription to FOCUS (3 issues) for $8.00 (Canadians add $3.00)

(CSA/USA) ( Celiac Sprue) CSC (CSC) (Syndromes of the cerebellum Ataxia Joseph Disease Olivo-ponto-cerebelar atrophy) United Cerebral Palsy Association, Inc. (PPI) ( Cleft Lip/Palate) Cleft Palate Foundation (CPF) ( Cleft Palate) Share and Care Cockayne Syndrome Network (Cockayne Syndrome Xeroderma Pigmentosum) Coffin-Lowry Syndrome Foundation (CLSF) ( Coffin-Lowry Syndrome) Coalition for Heritable Disorders of Connective Tissue ((CHDCT) Connective Tissue Disorders Marfan Syndrome) Thalassemia Action Group (TAG) (Thalassemia Thalassemia minor Thalassemia major Thalassemia intermedia Beta - Thalassemia Cooley's Anemia) AHEPA Cooley's Anemia Foundation, Inc. (CdLS) ( Cornelia de Lange Syndrome) Agenesis of the Corpus Callosum Network (ACC Network) (Corpus Callosum Abnormalities, including Agenesis, Dysgenesis, Malformation, Underdevelopment of the Corpus Callosum; Agenesis of Commissura Magna Cerebri) About Face U.S.A. (Facial Anomalies Cleft Lip/palate Crouzon Apert Treacher-Collins Hemangioma Cystic Hygroma) Children's Craniofacial Association (CCA) (Craniofacial Anomalies Facial Disfigurement) FACES, National Association for the Craniofacially (Handicapped (FACES) Craniofacial Anomalies Facial Anomalies) Craniofacial Foundation of America (CFA) ( Craniofacial Anomalies) Let's Face It, Inc. (NPPSIS) Disabilities, general Rare disorders) National Self-Help Clearinghouse ( Any Disabilities) Association for Persons With Severe Handicaps ( Any Disabilities) National Center for Youth with Disabilities (NCYD) (Adolescents with Chronic IIlnesses Adolescents with Disabilities) Friends Health Connection (FHC) ( Any Disability) Parents Helping Parents (General Disability Children with Special Needs Tuberous Sclerosis) Association for Children with Down Syndrome, Inc. (FRAXA) ( Fragile X Syndrome) Freeman-Sheldon Parent Support Group (FSPSG) (Freeman-Sheldon Syndrome Whistling Face Syndrome Craniocarpotarsal Dysplasia) Parents of Galactosemic Children (PGC) ( Galactosemia) International Patient Advocacy Association (IPAA) (Gaucher Disease Rare Disorders) National Gaucher Foundation (NGF) ( Gaucher Disease) National Genealogical Society (NGS) ( Genealogical education & support) National Society of Genetic Counselors, Inc. (IOD) (Hemochromatosis Thalassemia Iron Overload Porphyria) International Joseph Diseases Foundation, INC (IJDF) (Joseph Disease Machado-Joseph Disease Spino Cerebellar Ataxia type 3 (SCA 3)) Joubert Synd Parents-In-Touch Network, Inc (JSPITN) ( Joubert Syndrome) American Association of Kidney Patients (AAKP) ( Kidney Disease) National Kidney Foundation ( Kidney Disease) Polycystic Kidney Research Foundation (PKR Foundation) ( Polycystic Kidney Disease) Klinefelter Syndrome and Associates, Inc.

Our emphasis is to find causes, treatments, and cures for retinitis pigmentosa (RP), macular degeneration, Usher syndrome, and related diseases. http://www.blindness.org/RP_Background.html - size 4K - 30 Jan 96 General RP Info. http://dux.dundee.ac.uk/~glewis/yqa.htm - size 14K - 12 Dec 95 Healthtouch - Health Information: Usher Syndrome & Retinitis Pigmentosa Referrals Usher Syndrome & Retinitis Pigmentosa Referrals. http://www.healthtouch.com/level1/leaflets/4860/hhirr015.htm - size 8K - 29 Feb 96 Lycos search results: retinitis pigmentosa Lycos search: retinitis pigmentosa. http://catalog.com/dicon/rp.html - size 15K - 24 Dec 95 Cuba Retinitus Pigmentosa Reference http://www.cubaweb.cu/tips/febrero/noti2.html - size 3K - 9 Feb 96 RETINITIS PIGMENTOSA ASSOCIATION INTERNATIONAL 619-296-5166 LOW VISION LECTURES--incl RP LOW VISION LECTURES. http://research.opt.indiana.edu/AAO95PB/SatPM/SatLVL.html - size 18K - 19 Feb 96 VITAMIN THERAPY BREAKTHROUGH FOR RETINITIS PIGMENTOSA This site maintained by David Condra, dcondra@dalcon.com, Please contact with additions or information to share

Links to NIH documents on the Causes of Visual Impairment SOME CAUSES OF VISUAL IMPAIRMENT If you or a family member are experiencing loss of vision, we strongly urge you to consult with an eye care specialist for proper diagnosis and treatment. There are several diseases which can cause loss of vision. The National Eye Institute has published the documents listed below on Macular Degeneration and Diabetic Retinopathy. The Retinitis Pigmentosa link below will take yu to the RP Home page. Use the BACK button of your browser program to return here when you have finished with one of the remote sites.

Resources - Where to find out more Server space and Web site donated by:

Preface Alexander von Humboldt Foundation American Cancer Society American Diabetes Association (see Lions SightFirst) American Federation for Aging Research American Foundation for Vision Awareness American Health Assistance Foundation American Heart Association American Optometric Foundation Association for Research in Vision and Ophthalmology Benign Essential Blepharospasm Research Foundation, Inc. "The aim of the foundation is to grant research fellowships and research awards to academically trained and highly qualified persons of foreign nationality, regardless of their sex, race, religion or ideology, to enable them to carry out research projects in the Federal Republic of Germany, and to maintain the resultant academic contact." RESEARCH FELLOWSHIPS Scope and Eligibility: The Alexander von Humboldt Foundation awards fellowships to highly qualified scholars of foreign nationality up to 40 years of age for long­term stays in the Federal Republic of Germany to conduct research projects of their own choice. SCHOLARSHIPS AFAR RESEARCH GRANTS Scope and Eligibility: AFAR provides up to $40,000 for a 1- to 2-year award to junior faculty (MD's and PhD's) to do research that will serve as the basis for longer term research efforts. Contact: Walter A. Schlapkohl, Research Grants Manager, PHONE: (301)948­3244 or 800-437-2423, FAX: (301)258-9454 NATIONAL GLAUCOMA RESEARCH PROGRAM Scope: Grants are awarded in this program based on the scientific merit of the proposal, the relevance of the research, and the potential impact of the proposed study on better understanding and/or treatment of glaucoma. Research Grant Program Scope: The Benign Essential Blepharospasm Research Foundation Research Grant Program is designed to fund research specifically related to the cause, treatment, or cure of benign essential blepharospasm or Meige's Syndrome.

The Foundation Fighting Blindness: Contact Information/ Where We Are Local TDD: (410) 785-9687 Affiliate Network, USA: our volunteer affiliates across the nation Internationl Retinitis Pigmentosa Association (I.R.P.A.

Huntington Disease & Predictive Testing Decoding Genes: A Primer On Genetics & Molecular Biology Current Progress In Finding Genes Involved In Hearing Impairment Genetic Syndromes Alport Syndrome Stickler Syndrome/Marshall Syndrome Otosclerosis What Is The Cause Of Otosclerosis? Last updated "+ document.lastModified ); //end hiding contents --->

Lycos search results: retinitis pigmentosa Lycos search: retinitis pigmentosa 1) Retinitis Pigmentosa [1.0000, 2 of 2 terms, adj 1.0] Outline: Retinitis Pigmentosa Abstract: Subject: Retinitis Pigmentosa Author(s): Journal: Book: Subject: Retinitis Pigmentosa Author(s): Vernon, McCay Journal: Book: Subject: Retinitis Pigmentosa Author(s): Journal: Book: Subject: Retinitis Pigmentosa Author(s): Journal: Book: Subject: Retinitis Pigmentosa Author(s): Journal: Subject: Retinitis Pigmentosa 2) Retinitis Pigmentosa [0.9517, 2 of 2 terms, adj 1.0] Outline: Retinitis Pigmentosa Abstract: Retinitis pigmentosa is an inherited condition of the retina in which specific photoreceptor cells, called rods, degenerate. 3) Retinitis Pigmentosa [0.9417, 2 of 2 terms, adj 1.0] Outline: Retinitis Pigmentosa Abstract: Retinitis pigmentosa is an inherited condition of the retina in which specific photoreceptor cells, called rods, degenerate. 13) RPLIST: Retinitis Pigmentosa discussion/support [0.8489, 2 of 2 terms, adj 1.0] Abstract: RPLIST: Retinitis Pigmentosa discussion/support

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46 Arg-stop CGA-TGA 1 Retinitis Pigmentosa Am J Ophthalmol 1995; 119:65-71. 142 Arg-Trp CGG-TGG 12 Areolar Choroidal Dystrophy Am J. Ophthmol 1996; 121:623-9. 212 Ser-Gly AGC-GGC NA AD Retinitis Pigmentosa Amer J Hum Genet 1992; 51: 363.

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